Community, Connection, and a Vision for the Future: The 2026 Reeve Summit
The 2026 Reeve Summit in Boston was more than just a conference; it was a powerful gathering of minds, hearts, and innovation. Held from May 6th to May 8th, the event brought together advocates, researchers, and individuals dedicated to a common goal: enhancing quality of life and fostering a future of greater independence.
The Christopher & Dana Reeve Foundation continues its steadfast mission to cure spinal cord injury by advancing innovative research and improving the quality of life for those living with paralysis. The Summit mirrors this dedication, designed specifically to foster collaboration and provide a platform where the community can share "real-world" expertise and life-changing resources.
One of the most impactful sessions featured our Executive Director, Arash, in a panel discussion moderated by the legendary Nurse Linda, alongside fellow advocates Jennifer Longdon and Eric Gibson. The conversation focused on the critical topic of aging with paralysis. Arash shared a practical "gem" of wisdom regarding the vital importance of shoulder health, though he balanced the serious advice with a hilarious story about his first time skiing that had the entire room laughing. The session concluded on an inspiring note as Jennifer reminded everyone in attendance that they are "unicorns"—unique, resilient, and magical in their own way.
A personal highlight for Sarah was her one-on-one interview with Nurse Linda. During their time together, they discussed the surprise of the Summit: Nurse Linda being honored with the Visionary Leadership Award. In true fashion, she shared that the accolade was as much a shock to her as it was a delight to the rest of the community.
The keynote speaker of the event was Marissa Bode, the breakout star of the Wicked films. Bode made history as the first wheelchair user to play the role of Nessarose, a character who has traditionally been portrayed by non-disabled actors since the musical's stage debut. During her talk, she detailed how the production set a new standard for Hollywood by prioritizing authentic representation and accessibility from day one. This included the hiring of a disabled disability advisor and the creation of a fully "accessible Oz," featuring custom ramps and a specialized trailer equipped with a chair lift and voice-activated doors. Bode emphasized that these accommodations allowed her to focus on her craft as an actor first, signaling a long-overdue shift toward true equity for disabled talent in the industry.
The spirit of the event was perfectly captured by TJ Griffin, who manages the Peer & Family Support Program. As a leader of the Foundation’s mentorship initiatives, TJ was every bit as awesome and dedicated as his reputation suggests. Between sessions, Sarah also caught up with trailblazers Marissa Bode and Ali Stroker, along with with Ali’s mother-in-law and her son, Jessie. It served as a reminder that family, friends, and the next generation are truly at the heart of this.
The venue and hotel accommodations were perfectly accessible, making the experience seamless for all. The hotel itself even included a heated indoor therapy pool! While Sarah focused on her strength training using elliptical machines and recumbent bikes, Arash was able to take advantage of the pool for his own specific workout routine, highlighting how the right environment can support everyone’s individual fitness needs.
The energy in Boston was high, leaving everyone motivated to continue the work of advocacy and innovation. If you weren't able to join us this year, be sure to keep an eye out for information regarding next year’s Summit. You won’t want to miss it!
