Your Voice, Your Future: Attend the SCI PFDD Meeting to Tell Your Story

On September 29, 2026, an unprecedented event will bring the spinal cord injury community together in a way that has never been done before. The Spinal Cord Injury Patient-Focused Drug Development (PFDD) Meeting offers a direct line to the decision-makers who design, evaluate, and approve future treatments. Representatives from the FDA, along with leading clinical researchers and drug developers, are gathering for a FREE, five-hour virtual summit to listen directly to those living with SCI and their care partners.

You will participate in real-time polling, share live commenting, and directly shape discussions surrounding the daily realities, challenges, and unmet needs of living with a spinal cord injury. The insight gathered during these five hours will be compiled into an official "Voice of the Patient" report, which will be published on the FDA website and used for years to guide research priorities, clinical trials, and therapeutic approvals.

When regulatory bodies and medical innovators make decisions about the future of SCI research, ensure that your perspective is represented in the room. Showing up matters because every voice adds weight to the collective message driving real progress.

Event Details:

  • Date: Tuesday, September 29, 2026

  • Time: 10:00 AM – 3:00 PM ET (7:00 AM – 12:00 PM PT)

  • Format: YouTube LiveStream

  • FREE Registration Link: HERE

Your Voice Matters! Reserve a spot now to ensure your experience shapes the future of SCI research. Find out more HERE.

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