September 2019 Newsletter
Upcoming Meeting
This month’s meeting of the Sonoma-Marin SCI Support Group will be held on Monday, September 16 from 4:00-5:30 pm at Sequoia Senior Solutions, 1372 N. McDowell Blvd., Suite S, Petaluma.
Irma Cuevas, Community Engagement Coordinator for Sonoma County Regional Parks will be this month’s speaker. She will discuss the Parks’ upcoming eco-access program, eligibility requirements for the access pass that is $29, and will provide a list of accessible trails.
For more information, please contact SonomaMarinSCI@gmail.com. We hope to see you there!
News and Resources
Living with Paralysis: Secondary Conditions
One of the major issues for individuals living with spinal cord injury is navigating a series of challenging secondary conditions. These conditions are sometimes unrecognizable and can even be life-threatening to members of our community. The Christopher & Dana Reeve Foundation website offers vast resources and information through their Paralysis Resource Center to help our community take control of their health and improve their quality of life. READ MORE.
New Clinical Trial Aims to Restore Function of Arms and Hands in Quadriplegics
Connecticut-based ReNetX Bio, a biotechnology company working to reverse disease and damage for patients suffering from spinal cord injury and other central nervous system (CNS) disorders, has announced a successful first patient dosing in a Phase 1 clinical trial of its lead drug candidate, fusion protein AXER-204. You may be able to participate in the clinical trial if you are 18-65 years of age and have traumatic cervical SCI that occurred at least one year ago that impairs your ability to use your arms and hands. READ MORE.
Participation Requested by Sept 15: Sexuality & Disability Survey Seeks Critical Feedback from SCI Community
The Bay Area Sexuality and Disability Network (BASDN) has partnered with Stanford University School of Medicine's WELL For Life program to create a survey assessing the experiences of people with disabilities related to sexuality. Many months have been spent fine tuning the survey with Stanford to make sure it captures enough data to truly understand the experiences and needs of people with disabilities. Once analyzed by Stanford, the data will be used to secure funding with which BASDN can begin to address the needs of the community as identified through the survey. This is the first time any organization has collected and evaluated this type of information and your participation is critical to the success of the effort. TAKE THE SURVEY.
Mission of the Sonoma-Marin SCI Support Group
To assist those newly injured with spinal cord injury or disease as well as those who continue to be affected by long-standing disabilities. We meet the third Monday of the month at Sequoia Senior Solutions, 1372 N. McDowell Blvd., Suite S, Petaluma from 4:00 to 5:30 pm.
We are here to support each other in every way possible by providing useful, up-to-date information about services and products as well as an atmosphere that allows for discussion of personal challenges and solutions to everyday problems.
